My Crohnic Life

– LIFE WITH AN INVISIBLE DISEASE – 

Luna: My Moon and My Stars

According to NASA, the moon’s purpose is to make the Earth a more livable planet through the dark hours of night, as the brightest and largest object in the sky. While she may not be large, Luna’s light shines endlessly and makes my world a much more livable place, especially at my darkest hours. This […]

Anxiety

To the doctor that looked at my 14 year old body that was starving and malnourished and deemed me anorexic, regardless of how much I, or my family, tried to argue otherwise… I have anxiety now. To the male nurse that violated my boundaries at age 15, after surgery, when I was most vulnerable by […]

EDS (Hypermobile Ehler’s Danlos Syndrome)

Look, I’m no expert. But this illness? Yeah, f*cking bullsh*t. And no, I am not negating the validity; this illness is all too real. It just SUCKS. Those who are suffering from Hypermobile Ehler’s Danlos Syndrome experience frequent joint subluxations, dislocations, extra-bendy joints and fragile skin. hEDS causes the connective tissues (i.e collagen and fascia) […]

POTS (Postural Orthostatic Tachycardia Syndrome)

Ahhhh, if I had a dime for every time I have had to explain this illness to a doctor, I’d be able to pay for salty supplements for the rest of my life. POTS (Postural Orthostatic Tachycardia Syndrome) is a disorder that causes orthostatic intolerance, as one of the main symptoms. Basically, the blood vessels […]

Crohn’s & Arthritis

Most horror stories set on Friday the 13th involve slashers named Jason, a damsel in distress and cheesy Hollywood effects. My own Friday the 13th tale involves less psychopaths, yet rivals the gore and terror categories. My first diagnosis came after years of unexplained medical anomalies. On September 13, 2013, my pediatric GI doctor found […]