Waiting. And waiting and waiting and waiting. This seems to be all I do these days. I am a full time patient, holding temporary residence in Limbo. While this is a place I’ve often dwelled, I’ve been lucky to escape. Time and time again. But, here I am, unpacking my bags and dusting the shelves […]
I live in a body made of glass. Sturdy, but always at the risk of shattering in one fell swoop. How do you find strength, when your body, your home, is falling apart? Any movement risks another piece to fall out of place. I remember what it was like to live without this fear, this […]
“What does a typical flare day look like for you?” This is a common question for me recently; rather than type out a boring summary of my day, I thought I’d show you. Yesterday, I had no appointments or pharmacy runs, so I took this day as an opportunity to answer this question; I recorded […]
Cannabis saved my life. Pain has riddled my memories with darkness. I vividly recall the sensation of a dozen knives being plunged into my abdomen and then being violently twisted around. At the time, I was lying on the cold tiles of my bathroom floor with hot tears rolling down my face, agonizing screams leaving […]
“But you don’t look sick.” This is a common phrase heard by the invisible illness community; while people may think it’s a sort of compliment, it’s actually extremely invalidating and frustrating. We constantly feel misunderstood, judged and ostracized by those around us (even close family, friends and healthcare professionals). What do you do when you […]
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